- •What is the primary question addressed by this study?— To what extent do care partners project their own preferences onto surrogate assessments of everyday preferences for persons with cognitive impairment and dementia?
- •What is the main finding of this study?— Significant projection was noted within preference domains of autonomous choice, personal growth, and keeping a routine. More significant cognitive impairment was associated with increased projection within the preferences domains of autonomous choice and personal growth.
- •What is the meaning of the finding?— From a bioethical standpoint, the goal of surrogate decision-making is to align surrogate decisions with what persons would choose for themselves; these data highlight decisional areas where extra attention is needed by care partners to improve the fidelity in the decision-making process.
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- The accuracy of surrogate decision makers: a systematic review.ArchInternMed. 2006; 166: 493-497
- Education outcomes of a multisite, virtual, interprofessional training in patient priorities aligned care.J Am Geriatr Soc. 2022; 70: E5-E7
- Projection in surrogate decisions about life-sustaining medical treatments.Health Psychol. 2001; 20: 166-175
- Spouse as health care proxy for dialysis patients: whose preferences matter?.Gerontologist. 2005; 45: 812-819
- Do older adults know their spouses’ end-of-life treatment preferences?.Res Aging. 2009; 31: 463-491
- Similarity, agreement, and assumed similarity in proxy end-of-life decision making.Fam Syst Health. 2013; 31: 366-381
- Patient and surrogate disagreement in end-of-life decisions: can surrogates accurately predict patients’ preferences?.Med Decis Making. 2008; 28: 524-531
- Perspective taking as egocentric anchoring and adjustment.J Pers Soc Psychol. 2004; 87: 327-339
- Shared decision-making in dementia: a review of patient and family carer involvement.Dementia. 2016; 15: 1141-1157
- Differences in assessment of everyday preferences between people with cognitive impairment and their care partners: the role of neuropsychiatric symptoms.Am J Geriatr Psychiatr. 2020; 28: 1070-1078
- Longitudinal differences in everyday preferences: comparisons between people with cognitive impairment and their care partners.Int J Geriatr Psychiatry. 2021; 37 (Online ahead of print.)https://doi.org/10.1002/gps.5620
- Longitudinal changes in neuropsychiatric symptoms: impact of discrepancy in everyday preferences between persons with cognitive impairment and their care partners.Am J Geriatr Psychiatry. 2022; 30: 619-623
- The preferences for everyday living inventory: scale development and description of psychosocial preferences responses in community-dwelling elders.Gerontologist. 2013; 53: 582-595
- The alzheimer's disease centers’ uniform data set (UDS): the neuropsychologic test battery.Alzheimer Dis Assoc Disord. 2009; 23: 91-101
- The clinical dementia rating (CDR): current version and scoring rules.Neurology. 1993; 43: 2412-2414
- Validation of the NPI-Q, a brief clinical form of the neuropsychiatric inventory.J Neuropsychiatry Clin Neurosci. 2000; 12: 233-239
- Geriatric Depression Scale (GDS): recent evidence and development of a shorter version.Clin Gerontol. 1986; 5: 165-173
- The montreal cognitive assessment, MoCA: a brief screening tool for mild cognitive impairment.J Am Geriatr Soc. 2005; 53: 695-699
- Rectangular confidence regions for the means of multivariate normal distributions.J Am Stat Assoc. 1967; 62: 626-633
- Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis.J Gerontol B Psychol Sci Soc Sci. 2003; 58: P112-P128
- Caregiver rating bias in mild cognitive impairment and mild Alzheimer's disease: impact of caregiver burden and depression on dyadic rating discrepancy across domains.Int Psychogeriatr. 2013; 25: 1345-1355
- Older adult and surrogate perspectives on serious, difficult, and important medical decisions.J Am Geriatr Soc. 2018; 66: 1515-1523
- Family matters: effects of birth order, culture, and family dynamics on surrogate decision-making.J Am Geriatr Soc. 2014; 62: 175-182