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Data Security and Privacy in Apps for Dementia: An Analysis of Existing Privacy Policies

      Introduction

      Despite tremendous growth in the number of health applications (apps), little is known about how well these apps protect their users’ health-related data. This gap in knowledge is of particular concern for apps targeting people with dementia, whose cognitive impairment puts them at increased risk of privacy breaches. In this article, we determine how many dementia apps have privacy policies and how well they protect user data.

      Methods

      Our analysis included all iPhone apps that matched the search terms “medical + dementia” or “health & fitness + dementia” and collected user-generated content. We evaluated all available privacy policies for these apps based on criteria that systematically measure how individual user data is handled.

      Results

      Seventy-two apps met the above search teams and collected user data. Of these, only 33 (46%) had an available privacy policy. Nineteen of the 33 with policies (58%) were specific to the app in question, and 25 (76%) specified how individual-user as opposed to aggregate data would be handled. Among these, there was a preponderance of missing information, the majority acknowledged collecting individual data for internal purposes, and most admitted to instances in which they would share user data with outside parties.

      Conclusions

      At present, the majority of health apps focused on dementia lack a privacy policy, and those that do exist lack clarity. Bolstering safeguards and improving communication about privacy protections will help facilitate consumer trust in apps, thereby enabling more widespread and meaningful use by people with dementia and those involved in their care.

      Key Words

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      References

        • U.S. Department of Health and Human Services
        Examining oversight of the privacy & security of health data collected by entities not regulated by HIPAA.
        (Retrieved from)
        • Armontrout J.
        • Torous J.
        • Fisher M.
        • et al.
        Mobile mental health: navigating new rules and regulations for digital tools.
        Curr Psychiatry Rep. 2016; 18: 91
        • Torous J.
        • Keshavan M.
        • Gutheil T.
        Promise and perils of digital psychiatry.
        Asian J Psychiatr. 2014; 10: 120-122
        • Blenner S.R.
        • Kollmer M.
        • Rouse A.J.
        • et al.
        Privacy policies of Android diabetes apps and sharing of health information.
        JAMA. 2016; 315: 1051-1052
        • Huckvale K.
        • Prieto J.T.
        • Tilney M.
        • et al.
        Unaddressed privacy risks in accredited health and wellness apps: a cross-sectional systematic assessment.
        BMC Med. 2015; 13: 214-226
        • Smith A.
        U.S. smartphone use in 2015.
        (Retrieved from:)
        • Wasser T.D.
        • Fox P.K.
        For whom the bell tolls: silver alerts raise concerns regarding individual rights and governmental interests.
        J Am Acad Psychiatry Law. 2013; 41: 421-429
        • Narasimha S.
        • Chalil Madathil K.
        • Agnisarman S.
        • et al.
        Designed telemedicine systems for geriatric patients: a review of the usability studies.
        Telemed J E Health. 2016; https://doi.org/10.1089/tmj.2016.0178
        • Rugerri K.
        • Maguire A.
        • Andrews J.L.
        • et al.
        Are we there yet? Exploring the impact of translating cognitive tests for dementia using mobile technology in an aging population.
        Front Aging Neurosci. 2016; 8: 21
        • Mayer J.
        • Mutchler P.
        • Mitchell J.C.
        Evaluating the privacy properties of telephone metadata.
        Proc Natl Acad Sci U S A. 2016; 113: 5536-5541
        • Torous J.
        • Roberts L.W.
        Needed innovation in digital health and smartphone applications for mental health transparency and trust.
        JAMA Psychiatry. 2017; https://doi.org/10.1001/jamapsychiatry.2017.0262